This is such a wonderful cause. Hailey’s Wish http://www.haileyswish.org is a non-profit organization founded in 2006 in honor of Hailey Reese Cavlovic, a beautiful 16 month old child who died from Alpers Syndrome, a fatal mitochondrial disease.
The tournament is to help raise money to fund the research needed to make advances in mitochondrial medicine and to also raise awareness about mitochondrial diseases among the medical community and the public.
Here is a brief explanation of the disease:
Mitochondrial diseases result from failures of the mitochondria, specialized compartments present in every cell of the body except red blood cells. Mitochondria are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth. When they fail, less and less energy is generated within the cell. Cell injury and even cell death follow. If this process is repeated throughout the body, whole systems begin to fail, and the life of the person in whom this is happening is severely compromised. The disease primarily affects children, but adult onset is becoming more and more common.
Details regarding the event:
The Hailey’s Wish 2008 Golf Tournament will be held at the beautiful Tijeras Creek Golf Club.
For more details about Tijeras Creek visit their website at: www.tijerascreek.com
Tijeras Creek is located at 29082 Tijeras Creek Rd., Rancho Santa Margarita, CA 92688. Phone: 949-589-9793
Tentative Tournament Details
10:30-12pm Golfer’s Arrive and Register
12:00pm Golfing Starts
4:30pm-5:00pm Golfers finish up course & return to clubhouse
5:00pm-6:00pm No Host Cocktail Hour
5:30pm – HELICOPTER GOLF BALL DROP – be sure to enter the golf ball drop raffle! See online flyer above for details.
5:45pm – Buffet Dinner and Awards Banquet Begins
There will be many great silent auction items to bid on and some great raffle items!! Thank you very much for your support and we look forward to seeing you there!
Hailey’s Wish is a non-profit organization founded in 2006 in honor of Hailey Reese Cavlovic, a beautiful 16 month old child who died from Alpers Syndrome, a fatal mitochondrial disease.
With your support we will;
* Fund research to advance treatments for children with mitochondrial diseases.
* Educate the medical community and public to promote early diagnosis and a better understanding of these complex diseases, which are nearly as common as childhood cancer.
* Promote the sharing of information between the medical team and families to enhance the continuity and standard of care for these children.
We are driven by the belief that through research and education we can work to assure all children an early diagnosis and a better quality of life.
A PORTION OF THE PROCEEDS OF THIS EVENT WILL BENEFIT THE CHILDREN'S HOSPITAL OF ORANGE COUNTY METABOLIC PROGRAM
